If you are interested in reading the re-write of the article I wrote for xojane please follow the link: http://www.xojane.com/healthy/pulmonary-hypertension-kids
I would like to add that xojane changed my title to be a real bummer. They also took the liberty of adding some pretty lame tags to my entry like 'death.'
Here is a preview of the article:
"December 21, 2013 is the day that forever changed the course of my life.

The news I
received was bad, very bad. In addition to being rare, PH is also
progressive, incurable and fatal. The doctor came into the room and
announced that I have 5, maybe 10, years to live. I was only 25.
I
looked out the window of the doctor’s office and saw many of my plans
for the future floating away. I was immediately advised against
pregnancy because of the high mortality rate associated with it for
women with PH. I hadn’t even had time to process all my other losses.
In
simple medical terms, Pulmonary Hypertension is considered a
contraindication to pregnancy. Pregnancy for women with PH increases the
risk of death for both the mother and child."
Please read the rest here
Please read the rest here